Albinism is a condition which is caused
by the defect where the body has failed to produce the pigment melanin usually
found in the eyes, skin, and hair. The people with these conditions in my area
are going through various challenges which call for serious action to be taken
so that they can be protected. Because of their coloring, the people of all
races with albinism face much discrimination and ignorance in this community
and the rest part of the world. Besides, many myths are associated with albino
which lead primitive people to exploit their vulnerability; some believe that
sleeping with them can cure HIV/AIDS. Others have been slaughtered by the witch
doctor since their organs are considered lucky and can be used as magic
portions. Therefore, there is a need to take the serious step which will help
in saving this group of people and restore their dignity. There is a need to
convince others who have erroneously believed the myth concerning albino that
there normal human beings like other who deserve to be respected.
There is a severe health risk that is
associated with albino which calls for action to save them. Studies show that
developing the skin cancer is a thousand times higher to albinos in comparison
with others. Besides, the children who suffer from albinism have higher chances
of developing the blisters on their skins when exposed to too much sunlight. In
the most region, the effect of the sunlight leads to the leathery, shiny and
inflamed skin. Besides, the individual with albinism have some abnormalities in
their white blood cells which are part of the immune system; this condition
predisposes them to infections since their body lacks the capacity to fight
diseases. Many of them also suffer from the peripheral neuropathy which is a
condition that causes the peripheral nerves demonstrate some abnormality which
leads to a decreased sensation such as burning or tingling. Also, albinism is
associated with the abnormality in the platelets, condition that predisposes
them to regular bleeding. Irregular functioning of the platelets has a great
effect and interferes with the proper operation of the intestines, lungs and
other organs. ("Visual Cortex Defects in Albinos," 2015)
Based on the statistical data presented
by the county health department, more than 50% of people living in albinism
suffers in silence since they fear to go to the health centers where they face
much discrimination from the doctors who do not accord them respect and dignity
as others. Some of them are charged higher to get the health services compared
to other people with normal skins. Their children are no exception, they
experience a hard time in school and mocked by other children who do not
believe albino are rational human beings. The agencies that fight for the
welfare of people living with albinism explain that albino faces many
challenges in their attempt to get the quality education in our schools. The
teachers do quite little to help them and teach other children that albino is
normal human beings who needs to be handled with respect and dignity. There
other non-governmental organization who can carry out a research concerning
this group of people and have demonstrated that they have been neglected even
by the leadership of the country. In most cases, albinos don’t have their representatives
in leadership who can be able to address their plight effectively. They have
been forgotten even by the government of the day; she is doing nothing to help
this marginalized group and enable them to improve their lifestyles.
The state’s health demonstrates that
most of the medical facilities needed by this group of people are not available
in the health centers, a situation that worsens their condition further. Albinos
are isolated, in every social gathering, there are not supposed to mix with
others. They are always in small groups since most people believe that this
condition is a disease that can spread to others. Hence, they are neglected in
the social setting and excluded when discussing the pressing matters that are
affecting the community which they are part of. More so, some misguided
cultures worsen the plight of the albinos in this community, quite a large of
people believe that albinism is a curse, hence should not be allowed to mix
with others. Worse still, others believe that they should not be allowed to
live since they will spread the curse to the whole community. Therefore, my
program seeks to educate people so that they can do away with the misconception
they hold against the albinos. Am planning to have a session with every member
of this community at different times when they are available and teach them
concerning the albinisms so that they can understand what it is. My goal is to
have everyone appreciate that albino are the human being who needs to be
treated like others in the community. I will advocate for their empowerment and
provision of the conducive atmosphere so that they can be able to exercise
their potential which will help in solving the problems and challenges which
this society experiences from time to time. (Demont, 2014)
There are various method my program
will overcome the cultural as well as the social difference concerning albinism
in my community. I will encourage the teachers to start teaching concerning the
albinism at the early age so that children can grow up with that knowledge. I
will have a platform with people who attend the social institutions such as
churches, mosques, and temples and encourage them to acknowledge the albinos in
such institutions through involving them in their affairs and according to them
the leadership positions. These institutions have a significant influence in
the society, and once they empower the albinos in their midst, it will be
adopted by everyone in the society. The government should also appreciate
albinisms and have stern measures to those people who are fond of inflicting
pain and suffering on them due to misguided culture and bad teaching which they
have received concerning this group of people. I will work closely with the
organizations that fight for the rights of the minority and marginalized
individuals in the society. I will urge them to intensify their efforts in
ensuring that albinos are appreciated, and their dignity is restored in the
society. I will mobilize people and organization of the like mind to fight so
that the discrimination that is experienced in the social amenities such as the
school, hospitals, and religious institutions to come to an end. The hospitals
and other medical centers should have enough facilities to take care of the
albinos. Therefore, with time my program will ensure that this vulnerable
population is respected and their grievances well handled by the relevant
authority.
There are many organizations have shown
willingness to work with me as I implement my program and empower the albinos
in the society. These organizations majors on albinos and the ways which they
can stop the mistreatment, suffering, and exploitation which they go through in
the hands of people who should be taking good care of them. However, for the
interest of time, I chose two organizations that I felt are enough and will
help me meet my goals. One of them is the Salif Keita Global Foundation which
brings the global plight of people with albinism to the media attention. It
advocates for their rights as well social integration. Besides, it raises the
fund to provide them with free educational services and health care in the
United State, Africa and to the rest part of the world. The director of this
organization is Mr. Keita who is American journalist and activists. The other
organization which I will work with is the National Organization for Albinism
and Hypopigmentation. Its primary role is to educate the society concerning
albinism and how to make them feel loved and appreciated. It has various
programs to enlighten the society the steps it ought to take to provide a
friendly environment for albinos. It has impacted many people; the results are
more outstanding.
These organizations will be beneficial
in my program. Being in operation for a long time, they have enough knowledge
concerning how one can do to impact the albinos. They have a network of people
who are willing to volunteer their time and resources in offering service to my
programs. The experience which the directors of the organization have in
working with albinos for years will be quite resourceful in the implementation
of my programs. They will help me get the skills and the relevant knowledge
based on the steps I need to take so that I can be more impactful to the
albinism society. Having worked and well connected with the government based on
their excellent work, they will connect me with the governmental authority that
can hold my hands and work with me in delivering the services that are based on
empowering and fighting for the rights of this group of people. Hence, my
program will be more established, and now I will be able to offer outstanding
services to the albinos. I will have the resources that I will use in carrying
out the campaigns in every part while educating people concerning the albinos.
Besides, these organizations will help
in providing to the albino society the services that are not offered in my
programs. For instance the counseling services for people who have lost hope
and feel like they reached to the end of the road based on the mistreatment and
discrimination they face. The Salif Keita Global Foundation has the right
facilities to offer free counseling to this group. More so, they have enough
funds to provide financial help to the albinos who come from the needy
background. Some of them have been neglected and disowned by their parents, and
therefore they have no one to take the right care of them. They struggle to
earn a living and get the necessities of life; others do not get the primary
education due to financial challenges. These organizations have enough funds to
assist those who leave in abject poverty. (Lund, 2012)
There are four funding agencies which
have shown the willingness to offer the financial support to my program. One of
them is Adoption Opportunities, which is a federal government funding agency
whose objective is to facilitate the welfare and provision of a permanent as
well as the loving environment for the children without parents of who have
neglected especially those who have special needs such as the albinism, and the
disabled infants. The director was very impressed by my program and promised to
fund it and to stand with me in the whole process. The administration of the
Arizona State is another potential funding sources; the government has been
quite supportive of my program. It is because this state has quite a big number
of albinos. Besides, The Human Right Watch which is a non-profit organization
has shown a great willingness to support my program. It is an organization,
which fight for the rights of the people in the society. An Action Against
Hunger is a profit organization that promised of the support. It majors on
providing food to marginalized people who lives in abject poverty. To fully be
helped by these agencies, I have to have a good work plan and demonstrate the
goals I want to achieve in future. I have to prove that I have no selfish
interest, but my motive is to empower the albinos and brighten their future.
Besides, I had to show what I have done in the past to achieve my vision; it
was meant to prove whether am consistent or not to find out if am worthy of
assisted.
In conclusion, this program is a noble
task that will go a long way in restoring the dignity of the albinos. For too
long their cry and grievances have gone unheard, and it’s time to go to their
aid and have them feel that they are part and parcel of the society. They are
our brothers and sisters whose only difference is the nature of their creation
and therefore no reason to mistreat them.
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